"Creating Awareness One Parish at a Time"
We are the VOICE and the STRENGTH for those who struggle for a diagnosis of dysautonomia, due to lack of education and awareness. We are the HELPING HANDS that find resources for our members and their caretakers, so no one travels this journey alone. We are here to bring KNOWLEDGE and AWARENESS to medical providers and the general public, so dysautonomia is no longer unheard of.
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Thank you to our 2023 sponsors!
DYSAUTONOMIA
[ dis-aw-tuh-noh-mee-uh ]
Dysautonomia, or autonomic dysfunction, is a condition which affects the proper function of the autonomic nervous system (ANS). This affects the heart, bladder, intestines, sweat glands, pupils and blood vessels.
-Cleveland Clinic
We aim to share our stories with hospitals, health care offices, families, and friends. Our goal is to find caregivers and individuals who go undiagnosed or misdiagnosed. We are here to inspire, advocate, be the example, pave the way, and cast a light into the vast darkness that comes with a chronic illness like dysautonomia. If we reach just one person, so they do not struggle for years to receive a diagnosis and proper treatment, then we have achieved our goal. We will work tirelessly until every parish, hospital, school, and community in Louisiana have been touched by our group.