"Creating Awareness One Parish at a Time"
We are the VOICE and the STRENGTH for those who struggle for a diagnosis of dysautonomia, due to lack of education and awareness. We are the HELPING HANDS that find resources for our members and their caretakers, so no one travels this journey alone. We are here to bring KNOWLEDGE and AWARENESS to medical providers and the general public, so dysautonomia is no longer unheard of.
LET'S BE SOCIAL!
Thank you to our 2023 sponsors!
GET INVOLVED
"There's no better exercise for your heart than reaching down and lifting people up."
-John Holmes
If you have some spare time and a passion to help others, this is your place.
There are many ways our supporters can contribute to Dysautonomia Louisiana, Inc's important work. Use the selections below to learn more. If you have any questions or would like to get involved in other ways, please don't hesitate to contact our friendly crew.
BECOME A VOLUNTEER
We need event planners, data researchers, social media managers, phone call makers, letter writers, graphic designers, and much more...
You can work from your home any hour of the day (or night). If you're limited for time, you're welcome to come out and volunteer an event. Whatever you have to offer, we are in need of it!
To become a mover and shaker on our team, please fill out the form below and we will find a place for you to shine!
PLAN AN EVENT IN YOUR PARISH
Have an impact in your parish by planning/requesting a proclamation, hospital awareness event, or fundraiser.
Request is Free of charge, Dysautonomia Louisiana covers the cost for you!
The following parishes are still in need of a proclamation Allen Parish Beauregard Parish Bienville Parish Calcasieu Parish Cameron Parish Catahoula Parish Claiborne Parish Concordia Parish DeSoto Parish East Carroll Parish Franklin Parish Iberia Parish Jackson Parish Jefferson Davis Parish Lincoln Parish Madison Parish Morehouse Parish Pointe Coupee Parish Richland Parish Sabine Parish Tensas Parish Union Parish Vermilion Parish Vernon Parish Webster Parish West Carroll Parish West Feliciana Parish
The following parishes already have a proclamation, now we are ready for an awareness event in this Parish. Acadia Parish Ascension Parish Assumption Parish Avoyelles Parish Bossier Parish Caddo Parish Caldwell Parish East Baton Rouge Parish East Feliciana Parish Evangeline Parish Grant Parish Iberville Parish Jefferson Parish Lafayette Parish Lafourche Parish LaSalle Parish Livingston Parish Natchitoches Parish Orleans Parish Ouachita Parish Plaquemines Parish Rapides Parish Red River Parish St. Bernard Parish St. Charles Parish St. Helena Parish St. James Parish St. John the Baptist Parish St. Landry Parish St. Martin Parish St. Mary Parish St. Tammany Parish Tangipahoa Parish Terrebonne Parish Washington Parish West Baton Rouge Parish Winn Parish
If you would like to sponsor a proclamation or sponsor an awareness event, please visit our 'Donate' page or simply click on the links.
Every parish that has had a proclamation or held an awareness event, which was organized by
the parish council,
has been painted turquoise.
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"Surround yourself with people who get it"
- Ashley Parish Benoit
MEET OUR MEMBERS AT LARGE
These are the "movers and shakers" of our organization. The folks who make things happen!
Cheryl Robinson
Honorary
Member-at-Large
We need you!
Community Committee Leader
Billie-Ann Lopez Reed
Honorary
Member-at-Large
Please help
Educational Committe Leader
Lori Monte Besselman
Honorary
Member-at-Large
say YES..
Fundraising Committee Leader
Will this be you?
Medical Committee Leader
say YES..
Fundraising Committee Leader
Contracts Pending...
Please visit this at a later date
RESEARCH
Let's help make a difference in the world of research by participating in the following studies!
Shortness of Breath in Dysautonomia: A Patient Reported Outcome Study
University of North Carolina at Pembroke (UNCP)
Shortness of breath, or dyspnea, is a commonly reported symptom
by dysautonomia patients, but its exact prevalence is not known. Shortness
of breath can be an isolating factor and have an impact on the quality of life.
In this study, we are asking people who have a clinical diagnosis of any form of dysautonomia to complete surveys that help us assess the prevalence (frequency) and severity of shortness of breath, as well as its impact on quality of life. Participants will complete the surveys online once a year for three years. It will take approximately 30 minutes to complete the surveys.
There is no compensation for enrolling in the study, but your participation can help the biomedical community to understand the prevalence of shortness of breath in dysautonomia, thus raising awareness about this often-underappreciated symptom and hopefully reducing time to diagnosis.
